These are daily videos of me talking about living with Primary Progressive Multiple Sclerosis, symptoms, treatments, relationship, everything. I try to keep the videos UNDER 90 seconds and embed each in ther gratitude journal post that matches the date. My goal is simple. Create something for Tribespeople to share, discuss and learn.
MS Diary | Monday, 9/11/23 | Last Ocrevus infusion of 2023! I got my fingers crossed. I got my hopes high.BUT, I’m keeping my mindset OVER bullshit. Today is my final Ocrevus infusion of 2023. According to the “stats”, 70% of patients report no worsening of symptoms. 25% report improvement of movement. None of that …
MS Diary | Monday, 9/11/23 | Last Ocrevus infusion of 2023! Read More »
MS Diary | Sunday, 9/10/23 | How I stay busy today Of course I still miss her. We ALL do. Still, I must focus, get things managed inside the crib, get shit posted outside the crib. I will win the day!#multiplesclerosis #chronicillness #disability #wheelchair #handicapped
MS Diary | Saturday, 9/9/23 | MS and missing someone I’m exhausted. My normal routines have worn me out. My wins have stretched me thin. My favorite wheelchair? It’s disabled and over there. Then, I’m missing my wife. I crashed early on Friday. Figured just getting off my ass would settle my thoughts, bully some …
MS Diary | Saturday, 9/9/23 | MS and missing someone Read More »
MS Diary | Friday, 9/8/23 | We NEED to eat You’re overthinking. First, you must eat and that requires getting help. Stop telling yourself that you’re a burden on others. Your survival makes you a treasure, your perspective makes you a champion, your stories make an Oracle. Eat. #multiplesclerosis #chronicillness #disability #wheelchair #handicapped
MS Diary | Thursday, 9/7/23 | My wheelchair wheel is bent The struggle is real. Having a bent wheel directly impacts every aspect of my life, restroom trips, getting food, water, I can’t even go in a straight line with sudden, jerky, crashes into walls. I’m thinking about changing my manifestations to focus on wheelchair …
MS Diary | Thursday, 9/7/23 | My wheelchair wheel is bent Read More »
MS Diary | Wednesday, 9/7/23 Day one. I miss my wife terribly but I’m going to make this week work. First up? Getting kids on school busses.